Watch Professor Francisca Joly, Beaujon Hospital, Paris, discuss what short bowel syndrome with intestinal failure (SBS-IF) is, how it can impact daily life and …
Short bowel syndrome with intestinal failure,
it's a rare condition.
The principal causes of short bowel syndrome
with intestinal failure are IBD,
for example, Crohn's disease;
you should do some resection on small bowel due
to inflammatory processes.
You have also vascular disease,
for example, mesenteric infarction due
to a thrombosis or arterial or venous thrombosis.
And you have other causes such as, abdominal traumatism
or also post-radiation enteritis due to past cancer.
The impact of short bowel syndrome with intestinal failure,
in terms of quality of life, is very important
because you will have
some social complication.
You can imagine when you have home parenteral nutrition
during 12 hours per day it's very complicated to travel,
to be with parents, family but also to go to work
because the technique is very important
in the day of the patient.
We can see in our current practise
that you have some patients with time
can decrease parenteral support.
The decrease of parenteral support, with any drug,
is due to spontaneous intestinal adaptation.
So, you have an increase of energy absorption
during the time, you have also an increase
of eating in this patient and it's possible to decrease,
and sometimes to wean off the patient,
that is the intestinal adaptation.
I believe that we have different unmet needs
for short bowel syndrome with intestinal failure.
We need to improve the knowledge on medical schools,
we need to improve the awareness of the disease
and the other aspect we need to do more research
because we need to improve the knowledge about,
for example, intestinal adaptation,
how we can increase intestinal adaptation.
I believe that all patients with short bowel syndrome
with intestinal failure should have an equal access
to the best medical care.

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